Getting a new serious or long term health diagnosis really can feel like someone’s pulled the rug from under you especially if it came completely out of the blue. I could have been as a result of an accident or an illness, but either way your head might be filling up with questions faster than the answers arrive- and you might find that lots of things will need to be learned along the way. Those first few days are often taken up with hospital letters and new medication routines, and it’s hard to know what should come next. Once things settle a little, it helps to focus on the practical steps that will make life easier.
Sorting transport
If walking long distances is difficult, the first thing to look into is a disabled parking permit. Applications usually go through your local council, and they’ll want medical proof, so ask your GP or consultant to write something that clearly explains your needs. Having the permit means you can park closer to shops, workplaces and hospital entrances which saves energy for the things that matter. If you don’t drive then it’s worth checking out the local transport schemes too. In many places you can get discounted bus or train travel, and in some cases free passes. Even if you only use them occasionally, they take away the pressure of arranging lifts all the time.
Making your home work for you
A rail next to the toilet or shower might not sound like much, but it makes moving around safer and less tiring if you struggle with your mobility. Bright bulbs in hallways help when vision or balance isn’t at its best, and clearing loose rugs or furniture makes trips less likely. An occupational therapist can visit and suggest what would make the biggest difference in your space, and you might even be eligible for help with costs if there are arger adaptations like a stairlift or wet room are needed. Even simple things, like moving plates and pans to lower cupboards so you don’t have to stretch, can save energy you’ll be glad to have later in the day.
Thinking about money
Living with a long term condition often costs more than people expect. Heating bills can creep up if you’re at home more, specialist foods or equipment aren’t cheap, and hospital parking alone adds up. It’s worth speaking to a welfare advisor, often based at the hospital or through a local charity. They can help with disability benefit applications, grants or support for carers. Don’t try to do it all alone. The forms are long and frustrating, and it’s easy to miss something that could help. Keep a folder or even just a shoebox with appointment letters and reports, because you’ll be asked for them again and again.
Building a new routine
Treatments take time, and energy can come and go in waves. Plan rest breaks into the day, and spread out the chores that you do so you’re not wiped out by lunchtime. Some people find it useful to picture their energy like money in a wallet, deciding carefully where to spend it. Try not to feel guilty about saying no to things that would leave you exhausted. Support groups can also be a lifeline, not just for advice but for the reminder that you’re not handling this alone. Doctors give the treatment plan, but people who live with the same condition often give the best everyday advice.
The owners and authors of Cinnamon Hollow are not doctors and this is in no way intended to be used as medical advice. We cannot be held responsible for your results. As with any product, service or supplement, use at your own risk. Always do your own research and consult with your personal physician before using.
Meg is an author at Cinnamon Hollow. She writes on a variety of topics sharing tips and ideas for daily life.
